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Poems

Dare to Believe
By: Author Unknown
EVERYBODY KNOWS ...
You can''t be all things to all people.
You can''t do all things at once.
You can''t do all things equally well.
You can''t do all things better than everyone else.
Your humanity is showing just like everyone else''s.

SO ...
You have to find out who you are, and be that.
You have to decide what comes first, and do that.
You have to discover your strengths, and use them.
You have to learn not to compete with others,
Because no one else is in the contest of "being you."

THEN ...
You will have learned to accept your own uniqueness.
You will have learned to set priorities and make decisions.
You will have learned to live with your limitations.
You will have learned to give yourself the respect that is due,
And you''ll be a most vital mortal.

~~~~~~~~~~~

DARE TO BELIEVE ...
That you are a wonderful, unique person.
That you are a once-in-all-history event.
That it''s more than a right, it''s your duty, to be who you are.
That life is not a problem to solve, but a gift to cherish.
And you''ll be able to stay one up on what used to get you down.

~~~~~~~~~~~~~~

I love my job, I love no pay!
I love it more and more each day.

I love making tea and biscuits galore,
Social workers, I simply adore.
I love my house and its location; I never get to have a vacation.

I love my furniture, drab and grey, and piles of paper that grow each day!
I think my job is really swell, there's nothing else I love so well.

I love to work with other carers, I love their leers, and jeers, and sneers.

I love my computer and its software; I hug it often though it won't care.
I love each program and every file. I’d love them more if they worked a while. I’m happy to be here. I am. I am.

I'm the happiest carer in the world, I am. I love this work, I love these chores. I love the meetings with deadly bores.

I love my job - I'll say it again - I even love those friendly men.

Those friendly men who've come today, in clean white coats to take me away!!!!!

 “Imagination”

Imagine a new understanding
We’ve waited patiently now for years
The pain we’ve suffered through STIGMA
Has created a river of tears
Imagine holding our heads up high
No more whisperings-secrets or lies
Lets bare the soul of Mental Distress
No more need for it’s meagre disguise
Imagine that Carer’s talk openly
We don’t hide behind assumed names
We talk about loved ones with pride and respect
Long gone are the feelings of shame
Imagine a new understanding
Equal amounts of compassion
Get well cards-flowers-comforting words
Will never again be on ration
Imagine that reporters change the way that they write
Words like Schitzo and Psycho are finally kept out of sight
Imagine a new understanding
No more alienation from the norm
Imagine that new generations
Are educated from the day they are born
Imagine our neighbours welcoming us
No more protests as to where we reside
Social inclusion won’t be an illusion
Imagine the lift to our pride
It’s time 4 change it’s time for the truth
To relieve decades of  painful frustration
Imagine we make this a reality
Not  a figment of  IMAGINATION.
Georgina Wakefield
 


Life after Death

Life after Death
 
Now I''m retired
And lost my wife
What shall I do
With the rest of my life?
 
I''ve been thro'' the mill
And suffered the pain
I''ve learnt about stress
Frustration and strain.
 
I''ll use the knowledge
Now I''ve passed the test
To help all those
Who are lost and bereft.
 
My love has flown
To her celestial nest
My beloved spouse
Is now at rest.
 
My heart was dead
My brain distraught,
Full of sorrow
I cared for nought.
 
But then a voice
From deep inside
Said "Love one another"
Let me be your guide.
 
My heart is now full
Of the joy I can give
To those who have suffered
And need a reason to live.
 
So lift up your hearts
Do not despair
Spread happiness and live
Show the world that you CARE.
 
Don Smith


SHE DIDN''T MEAN IT

She didn''t mean to spill that drink
She didn''t mean to choke on it
It doesn''t matter what you think
Compared to yours her life''s just sh**
She didn''t mean to wet the bed
The signals just don''t reach her head
She didn''t mean to get annoyed with you
With her MS you''d be annoyed too
If you ever think YOUR life''s a mess
REMEMBER
SHE DIDN''T MEAN TO GET MS.


Site News
Welcome to Chill4us Carers Message Board-----Forum Campaigning for a better life for Carers'.

Old Articles: Millions of pounds promised for carers has been diverted to plug NHS debts
Posted by wendy on Sunday, March 07, 2010 @ 16:12:33 GMT
RavenNuke(tm)

Millions of pounds promised for carers has been diverted to plug NHS debts

Millions of pounds promised for respite breaks for carers has been mis-spent and diverted to plug NHS deficits, an investigation has found.

 

Ministers pledged £150 million to allow those looking after sick, infirm and elderly relatives short periods away from their duties, to prevent them reaching "breaking point".

Ivan Lewis, the then-health minister, said as he unveiled the plans in 2008 that the "historic announcement" was the start of a programme to give carers the recognition and status they deserve, doubling the amount of help they received within two years.  

The extra spending was welcomed by charities representing Britain's six million carers, who say those looking after loved ones in the grip of conditions like dementia need breaks in order to maintain their own sanity and quality of life.

Now research has revealed that less than a quarter of the funding promised has been spent on respite care to allow carers some time off.

In total, almost £40 million of the first year's £50 million fund was diverted, and soaked up by NHS deficits and bureaucracy, according to data disclosed under a Freedom of Information request.

continued.......................



Spent properly, the fund could have allowed 33,000 carers a three-hour break every week, or given 173,500 carers an annual week's holiday, according to the strategy's projections.

Stephen O'Brien, shadow health minister, described the findings of the investigation as "an absolute scandal" and a betrayal of some of Britain's most vulnerable people.

Charities say they believe the pattern will be repeated with the remaining £100 million funding allocated for 2010/11, following indications they have received from NHS primary care trusts (PCTs).

The £150 million pledge was the centrepiece of the Government's strategy for carers, announced in 2008, when ministers vowed to double the amount of respite care available, in response to pleas from charities.

All PCTs were given a share of the funding for two years.

The research - by two charities, The Princess Royal Trust for Carers and Crossroads Care - shows that in 2009/10, just 23 per cent of the funds intended for respite care were spent on such support.

Most PCTs devoted just a fraction of the new funds to carers, while nine did not spent a single penny of their allocation on such help.

Carole Cochrane, chief executive of The Princess Royal Trust for Carers, said: "We are appalled that even this tiny pledge to the ordinary people who keep the NHS afloat with their vast caring contributions could not be honoured."

The charity is inundated with calls and visits from carers who have reached the end of their tether, she said.

"Just recently we were contacted by a woman of 79 who has a sick husband and a grown-up daughter with profound learning disabilities.

"Her husband had a heart attack in the middle of the night, but she couldn't go with him in the ambulance because no help could be found," said Mrs Cochrane. "These situations are desperate.

"Then there are youngsters who come home from school every day to bath, cook and provide intimate care for their parents.

"They often end up with a maturity beyond their years but they also need a childhood, and to have some time free to play and do normal activities for children of their age," she added.

"Without these breaks carers can be left to reach breaking point."

Imelda Redmond, chief executive of Carers UK, another charity, said: "We are absolutely furious about this. The Government made a huge fanfare about the strategy and it has amounted to so little.

"Respite care is the number one thing carers want; it can allow them to carry on, in many cases preventing an elderly person from having to go into residential care, and ensuring that husbands and wives are not forced to live apart.

"Nothing could have a greater impact on carers than this failure."

The Conservatives described the findings as "yet another broken promise" from the Government.

Mr O'Brien said: "Carers work tirelessly, and often thanklessly, looking after friends and family members, and deserve the support of the public, and of government.

"It is an absolute scandal that this money that Gordon Brown promised them is apparently being soaked up in NHS bureaucracy."

The nine PCTs that admitted they had not spent a penny of the funds allocated for respite care on services for carers in 2009/10 were: Cumbria, Hartlepool, Kirklees, North Tyneside, Northumberland, Portsmouth, South Gloucestershire, Stockton-on-Tees and Worcestershire.

On Tuesday, the Princess Royal, founder of the charity, will host a summit bringing all three main political parties together to discuss the crisis in care of the elderly and vulnerable, and the role played by Britain's six million carers.

Labour, Conservative and Liberal Democrat health spokesmen have all agreed to attend the talks, despite the fact that the Tories have previously refused to take part in cross-party discussions about funding for care of the elderly, following Labour's refusal to rule out a "death tax" on properties to fund long-term care.

The charity will urge all three parties to make a manifesto commitment giving all carers an entitlement to respite care.

Research has estimated that the free care provided by voluntary carers, usually relatives, saves the state up to £87 billion each year.

With Britain's population ageing rapidly, projections suggest that the number of people caring for relatives will increase by 50 per cent within a generation.

A spokesman for the Department of Health said it was down to the local NHS to decide how to spend the money, in the light of local needs.

The NHS Confederation PCT network, which represents the 150 PCTs, said the money was not "ring-fenced" and that organisations had to balance their priorities.

Joyce Toyn, 75, from Brenchley, Kent, cares for her husband Arthur, 83, who was diagnosed with Alzheimer's disease and cerebral vascular dementia three years ago.

As he became increasingly confused, and reliant on his wife, she struggled to cope with the burden, until, last December, she found a local charity which now sends a carer to provide respite cover for one morning each week.

Mrs Toyn said the help she receives has helped her to "keep her head above water".

"It stops me drowning in my sorrow," she said. "Arthur often doesn't know who I am.

"He will tell me I am beautiful, then a moment later he will say his wife has died, or that he doesn't know where she has gone, and get very anxious. I feel like I am already mourning my husband but he is still here.

"Sometimes it gets on top of me: I can get lonely, and feel trapped, and the responsibility becomes overwhelming. A few hours out of the house, a bit of exercise, or talking to someone else can make a huge difference."

Kelly Walker, 16, from Crystal Palace in south London, has looked after her mother Claire since the age of 10.

Her mother, a single parent who suffers from spinal problems, needs help washing, getting around the house, and in and out of bed.

The sixth-former said she is used to not having the freedom of other teenagers, but says that respite days out run by a local charity, which allow her to meet other teenagers with caring responsibilities, make a huge difference.

"I used to get very upset, because seeing mum in so much pain is very difficult, but I have got used to it," she said.

"My friends try and understand, but my life is quite different to theirs, and I can't do the same things they can, so it makes a massive difference if I can just chat to people my age in the same situation."



 

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Parliament
1.On 16th October 2007 a member spoke in the Houses of Parliament at the All Party Parliamentary Group for Carers.

Carers are in crisis and want actions to be taken urgently. Here are some proposals.

Do away with the overlapping benefits rule

Carers allowance to be increased

More respite to be available and when it is arranged it is not cancelled at the last minute.

Free prescriptions and glasses for carers

A heating allowance for carers because they dread the cold weather and the subsequent bills.

Care in the community is suitable for majority of people but each case should be assessed individually to ensure each person is treated for their needs. Health professionals should not go by the cheap option.

Elderly citizens need care and respect but they don’t get it because they are classed as unprofitable. Yet they gave us the society we have today.

We need a realistic TV documentary to be shown to raise awareness, something like the Cathy Come Home programme shown many years ago.



Carers are the forgotten ones and yet as you all know they save the country £87billion. It may seem easy to say these words, but when you see the reality, I’m sure it would upset you as much as it does me. From the last census we can assume there are carers who have not been included in these statistics, the hidden carers of our society, because they do not think of themselves as carers.
____________
2.Westminster trip highlights carers woes

KIM BRISCOE
15 June 2008 17:00



A woman from Norfolk has been to Westminster to try and highlight the plight of a carer who was told she needed to go back to work just 10 days after her husband died.

Wendy Maxwell,  who founded the carers' website Chill4us in 2006, led a delegation of members of the site to meet MP Ivan Lewis, who is the government minister for care services.

Now North Norfolk MP Norman Lamb has taken up their cause and said he was appalled to hear of the case of a carer from Nuneaton who received a letter just 10 days after her husband died.

It referred to her “change of circumstances” and asked her to visit an office so they could discuss her return to work


Mr Lamb, who is also the Liberal Democrat spokesman on health, said: “It's traumatic enough to lose someone but to then be told in a cold and clinical way that your allowance is coming to an end and you have to travel somewhere to talk about getting back to work is awful.

“That person suffered a lot of distress as well as anxiety of losing a financial concession.

“We are asking that in these circumstances there is some financial cushion following the death of their loved one, and some time lag so that they can help an individual get back on their feet.”

Mr Lamb said the feedback he had from carers, particularly during National Carers' Week last week, was that more respite care was needed.

Mrs Maxwell, who is a carer herself, is now hoping to meet the shadow Conservative spokesman on health, so that the three main political parties are aware of the issues faced by carers.

She said: “I felt angry that this member of our site, who is from Nuneaton and does not want to be named, was sent this letter in January, just 10 days after her husband died. That's why I wanted to speak to Ivan Lewis.

“I think carers should be listened to and valued. We were lucky to meet Mr Lewis and I think we made an impact. He normally speaks to carers en masse or to carers' groups so he found it useful to meet a small group of carers themselves.”

The carers were accompanied by Moira Goodey, the manager of the carer support department at Norwich Mind, on their trip to quiz the minister on what he would do to provide more help for people in their position.

Mrs Goodey said: “Carers can become ill, severely depressed and stressed resulting from issues because of their caring role.

“There has been legislation to improve the rights of carers but that needs to be followed up with funding.

“I'd like to see some tax credit for carers, many of whom are not able to work full-time because of their caring roles and so are not eligible for tax credits.”




Old Articles
Saturday, June 19, 2010
· End of life care improves for Norfolk children
Tuesday, June 15, 2010
· Lynda Bellingham opening Carers week in Norwich
Thursday, May 27, 2010
· Hosted chat with Norman Lamb for Carers Week
Saturday, May 15, 2010
· Putting People at the Heart of Care
Friday, April 30, 2010
· Which Political Party Will Look After Carers?
Monday, April 26, 2010
· “We must remove this stain on our nation’s character”
Sunday, April 11, 2010
· Please vote for Better Support 4 Unpaid Carers
Tuesday, March 30, 2010
· LAUNCH OF THE NATIONAL CARE SERVICE
Tuesday, March 09, 2010
· Government concedes to pressure from carers
Sunday, March 07, 2010
· Millions of pounds promised for carers has been diverted to plug NHS debts
Monday, December 14, 2009
· Day care services: Have your say
Wednesday, November 18, 2009
· Personal Care at Home Bill: Full details
Saturday, November 14, 2009
· Who cares for the carers of gifted and talented children?
Monday, November 09, 2009
· WE CANNOT KEEP FAILING OUR CARERS
Sunday, October 18, 2009
· Thousands of overs 65s denied mental health services
Saturday, October 17, 2009
· Carers 'need greater NHS investment'
Wednesday, October 07, 2009
· Listen to carers
Tuesday, October 06, 2009
· Autism May Be More Common Than Thought
Tuesday, September 22, 2009
· We must respect those who care
Sunday, September 20, 2009
· Campaigners say no to green paper's proposal for attendance allowance
Tuesday, September 15, 2009
· Sebastian Fischer: Show unpaid carers the respect they deserve
Thursday, September 10, 2009
· English Councils to benefit from new guide to help carers of vulnerable people
Monday, August 31, 2009
· Response by Chill4us.com to the Government's Green Paper
Friday, August 21, 2009
· People with dementia offered new support scheme
Tuesday, August 11, 2009
· RNIB steps up campaign to protect attendance allowance
Thursday, July 23, 2009
· Norwich bid to change care law
· New vision to make mental health everyone’s business
Tuesday, July 14, 2009
· Government launches the Big Care Debate
Saturday, July 04, 2009
· Celebration of carers' rights as new legal guide is launched
Thursday, June 18, 2009
· Changing Places Consortium Toilets Campaign

Older Articles

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